Added: Hannibal Frierson - Date: 01.05.2022 11:37 - Views: 22330 - Clicks: 8738
It is June First year Uni exams are over and after a night celebrating my friends and I are back home indulging in the obligatory post party takeaway. Orlando Magic are playing The Lakers who go onto win the championship series It isn't the game that I remember, but a clip of retired basketball legend Michael Jordan talking about what drove him to success in the NBA. Figure out how to climb it, go through it or work around it. But the message seemed just as applicable, maybe more so.
I'm was not aiming to shoot a three pointer or make the roster, I was simply trying to get through a Leg brace devotee stories of school, get the right medication, walk without braces, feel part of a group as I went the teenage years. To see where you have come from, you have to go back…. I was born in Boston, Massachusetts, emerging a lovely shade of blue and clearly unwell. I surprised everyone. Yet clearly there was. And I remained a mystery until I was five when, back in the UK, a wonderful doctor recognised the CMS symptoms and life changed for the better.
Those first five years were touch and go. I spent the majority of them in and out of hospital. Pneumonia would set in even with the slightest of colds. Without any medication I ran out of the energy to cough and went 'downhill' very fast. Every illness resulted in long periods of hospitalisation and intubation. Feeding me, was a marathon as weak muscles meant sucking a bottle was a huge effort.
One feed could take two hours. Oh how times have changed. No doubt result of my weakness, I also entered the world with incredibly stiff ts — a pretty acute form of arthrogryposis.
To straighten them, I underwent major orthopaedic surgery when but two years old, and spent eight weeks in a body cast. The operation proved a success but I continued to wear leg and wrist splints, callipers to aid walking and endured hours of physical therapy well into my teens to build up strength and suppleness in my skeletal muscles. According to my parents I literally stood up on my own for the first time ever. My sister was totally gobsmacked, having only seen her baby sister sitting, never crawling, and certainly not walking.
Now don't get me wrong, I wasn't shooting free throws at this point. My body hadn't used its legs properly since day one, muscles were still tight and stamina was, and still remains a massive issue. But it was a start - for the first time I had some energy. The test was positive and gave no doubt as to the cause for my fatigue. It enabled doctors to provide the drugs to help combat the illness and everything changed for the better. It was a little miracle. It was a haven of acceptance.
My parents didn't have to worry about the possible pitfalls of a 'regular' school at such a precarious time. However, I began to need more of an academic challenge, so after a year moved to a local mainstream primary, one where the head really understood all my physical limitations and laid on classroom assistance, help with school bags and aid with moving around the premises. I must point out how lucky I am to have parents who did the research, spoke at length to the head teachers, and made sure every decision was carefully considered with my CMS in mind.
Since that day I have remained in 'regular' education, Leg brace devotee stories many times though only for family relocations. As time progressed, I needed less assistance growing strong enough to dispense with callipers. The one constant limitation was PE. Any exercise was on my own, usually in the form of physio therapy. A side benefit of this was that I had extra time for homework, meaning I didn't have to stay up late and could get the necessary rest. By I had been taking my Pyridostygmine medication for five years and it was then that, whilst once more living in the USA, I was referred to the Mayo clinic in Minnesota.
I spent a week there having innumerable tests, bloods, meetings and a muscle biopsy. It has proved hugely beneficial in increasing my energy levels and in turn physical capabilities no end. I am often asked whether or not I was picked on at school, particularly in the early years when kids are at their most frank. How I handled going to school in callipers, being looked at when pushed in a wheelchair? How do you explain medical requirements when there is often no visible or when symptoms can change fairly rapidly, particularly when under stress, ill or tired. I'm never sure if my personality has helped me deal with it all, or perhaps it is the other way around - my illness has shaped me.
Being quite chatty, assertive and I hope empathetic has helped inordinately.
I have to be able to say when I'm not well, and articulate to colleagues and friends exactly what my illness entails - I can't walk a long ways without a short break, must take medication five times a day and sometimes will just be slightly more tired than the average person. I was lucky never to have been bullied at school. No wilting wall flower, I was always 'coolish' having a close group of friends whilst rubbing along with everyone else.
Day to day, the vast majority of people I've met have been generous, understanding and more than accepting - the big man upstairs has 'done good'. And for the minority? I pity their lack of kindness as we are all, as Plato says, fighting a battle' somewhere. I make sure I get a seat whoever possible and if really tired take a taxi - an extravagance to some, but for me just a small hurdle to Leg brace devotee stories I can still meet up with friends on a night in London.
When meeting new people I tend not to tell them I have an illness, I don't mention it in interviews as it bears no relevance to the role. If anyone asks, I gladly explain. If you or someone you know has been recently diagnosed, and are worried what the future holds I hope this note helps in some small way to highlight all the positives that there are. A doctor once told my mum I would be no more than a vegetable - well to her I say this.
I've made it through school, university, and have worked full time since the day I graduated. I love my job; collected a fabulous group of friends, have driven since I was 17, and have grade 8 Piano. The aim is to reach my own NBA final of sorts - move up the career ladder, perhaps have kids and get married, travel more….
Over the years I have found useful ways to cope - truthfully by trial and error.Leg brace devotee stories
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